Multiple Sclerosis Resources

 

 

 

 

Below are links to important websites in the MS world in general, as well as targeted resources for minority populations.

This content will be updated regularly, as I come across more information. Please check back frequently. Also, feel free to send me information about a website that I might be missing. 

General  MS Resources

THE NATIONAL MULTIPLE SCLEROSIS SOCIETY

Click the image above to access the home page. Below are some other useful links.

Managing MS Through Rehab

2021 Cooling Equipment Information & National Vendor List (includes discount codes and information on application for financial assistance)

Please peruse the entire website for more, as there is no paucity of information here.

MULTIPLE SCLEROSIS ASSOCIATION OF AMERICA

Click the image above to access the home page. Below are some other useful links.

MSAA Cooling Distribution Program

Who Get MS? MS Prevalence And The Need For A National Registry

Cover Story for Motivator: Promoting Mental & Emotional Wellness During Difficult Times

Please peruse the entire website for a wealth of information

Click the image below for My MS Manager Mobile App

TERRY WAHLS, MD.

Click the image above to access the home page. Below are some other useful links.

Dr. Wahls is a primary care doctor, who developed a nutrition & treatment protocol for MS, based on her experience as she healed from secondary progressive multiple sclerosis. She is author of a revolutionary book, & accompanying cookbook.

Please click the images below for the books

SHARLIN HEALTH AND NEUROLOGY

Dr. Ken Sharlin is a neurologist, MS specialist, and functional medicine doctor. He is very highly regarded by the Dr. Terry Wahls.

As part of his offerings, he has written books, has several programs targeting MS, and has a neuro fitness center

Sharlin Health Neuro Fitness

DR. GRETCHEN HAWLEY’S THE MSING LINK

Click the image above to access the home page. Below are some other useful links.

Online Membership Fitness Program for Multiple Sclerosis, The MSing Link

Dr. Gretchen also recently launched The MSing Link Podcast

Free Resources

OMS Living Well With MS Podcast Episode, featuring Dr. Gretchen: Using Exercise To Build Neuroplasticity. Please click the image below. 

THE MS GYM

Click the image above to access the home page. Below are some other useful links.

Free Resources

YOGA MOVES MS

Click the image above to access the home page. Below are some other useful links.

Class Schedule

According to the National MS Society, Yoga Moves MS classes are by donation

OMS YOGA

Click the image above to access the home page. Below are some other useful links.

Free Virtual Yoga & Meditation For People Living With Multiple Sclerosis

 

OPTIMAL BODY PERSONAL FITNESS

Click the image above to access the home page.

This personal fitness program helps MSERs increase strength and mobility.

DOM THORPE ONLINE FITNESS

Click the image above to access the home page.

MS Warrior Training Program

Free Facebook Group: Multiple Sclerosis Fitness & Exercise Motivation with Don Thorpe

HEALTH CENTRAL

Because of the tendency for spasticity in MS, stretching cannot be overemphasized. I found the following quite helpful, easy to understand and implement. 

6 Stretches To Ease MS Symptoms

CAN DO MULTIPLE SCLEROSIS

Click the image above to access the home page

Health and wellness education programs (currently webinars & coaching) to help families living with MS thrive

MEDCRAVE

I found this information useful, in light of us needing to get vaccines, to which the autoimmune community could potentially have reactions. I had used an antioxidant to mitigate my extreme reaction to the 2nd Covid vaccine and this article supports that practice.

Antioxidant For Vaccine Adverse Effects

CLINICALTRIALS.GOV

Click the image above to access the home page.

Search for MS clinical trials in your area, down to the type of MS

ABOVE MS

Click the image above to access the home page. Below are some other useful links.

They break down clinical trials in an easy to understand and digest manner.

Clinical Trials 101

This website has other great information about MS. Sign up for webinars & events here.

Click the image below for an accompanying app called Aby to support your MS journey with trackers, fitness information et al.

MS INTERNATIONAL FEDERATION

Click the image above to access the home page. Below are some other useful links.

MS organizations from all over the world are members of MSIF, including the National MS Society

World MS Day is the global campaign to raise awareness of MS, led by MSIF and its members. Please click the image below for the web page

World MS Day 2021 Recording

Minority Population MS Resources: Black & African American Communities

 

NATIONAL MS SOCIETY

Click the image above to access the home page. Below are some other useful links.

MS In The Black Community

Living Well With MS: A Guide For Black Americans

Please click the image below for the Black MS Experience Program Series

Black MS Experience Summit 2021 Registration

Black MS Experience Summit 2020 Recordings

MULTIPLE SCLEROSIS ASSOCIATION OF AMERICA

Click the image above to access the home page. Below are some other useful links.

Video Series on The African American Experience and Multiple Sclerosis:

Track 1Understanding the Covid-19 Impact in People of Color

Track 2: Clarifying the Confusing World of Clinical Trials in Underserved Populations

Track 3: The African American Experience

All Roads Lead to Change: Addressing Unmet Needs in the African American MS Community. This program convened AA leaders in the MS community, and the following paper was developed by the advisory board-

Multiple Sclerosis and the African American Experience

NATIONAL AFRICAN AMERICANS MS REGISTRY

Click the image above to access the home page. 

BRAIN CHAT WITH THE NERDY NEUROLOGIST/ BLACKDOCTOR.ORG

Please visit the BlackDoctor.org Facebook page, for Dr. Mitzi Joi Williams’ Brain Chat Episodes that take place at 7pm EST, every other Monday, since the inaugural episode on February 22nd, 2021.

Click on the image below for the episode pictured.

PRACTICAL NEUROLOGY

Click the image above to access the home page. Below are some other useful links.

Multiple Sclerosis In The Black Population In The United States

Minority Population MS Resources: Hispanic & LatinX Communities

 

NATIONAL MS SOCIETY

Click the image above to access the home page. Below are some other useful links.

Hispanics & Latinos

Researchers Compare MS In Hispanic Latinos Who Get The Disease Before Or After 18

MULTIPLE SCLEROSIS ASSOCIATION OF AMERICA

Click the image above to access the home page. Below are some other useful links.

Hispanic American MS Experience

BRAIN CHAT WITH THE NERDY NEUROLOGIST/ BLACKDOCTOR.ORG

Please visit the BlackDoctor.org Facebook page, for Dr. Mitzi Joi Williams’ Brain Chat Episodes that take place at 7pm EST, every other Monday.

Click on the image below for the episode pictured.

PRACTICAL NEUROLOGY

Click the image above to access the home page. Below are some other useful links.

Multiple Sclerosis In The Hispanic/ Latinx Population

MULTIPLE SCLEROSIS NEWS TODAY

Click the image above to access the home page. Below are some other useful links.

Hypertension Triples Disability Risk In Hispanic/ Latino MS Patients

Short Film For Hispanic & Latinx MS Patients Found To Improve Perceptions, Attitudes

Minority Population MS Resources: Asian Communities

 

FRONTIERS IN NEUROLOGY

Click the image above to access the home page. Below are some other useful links.

Multiple Sclerosis in the Asia Pacific Region: A Systematic Review of a Neglected Neurologic Disease

MS SOCIETY UK

Asian MS

ANNALS OF INDIAN ACADEMY OF NEUROLOGY

Multiple Sclerosis in India: An Overview

Minority Population MS Resources: Middle Eastern & Northern African Communities 

 

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